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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 4 days ago Apply Now
Top job
Chefs in Schools, London (Hybrid)
£36,408 per year
Create compelling content and make our social media platforms must visit spaces online.
Posted 1 day ago
Closing in 6 days
Hertfordshire Mind Network, Watford (On-site)
£32,000 - £34,000 per annum
Posted 1 week ago

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Closing in 7 days
Royal Hospital Chelsea, Chelsea (Hybrid)
£30,000 - £33,000 per year
Posted 2 weeks ago Apply Now
Closing today at 23:30
Prospectus, London (Hybrid)
£26.30 per hour (+ holiday)
Posted 1 week ago
Mind Tower Hamlets Newham and Redbridge (MindTHNR), E3 4DA (On-site)
£34,738 per year
Posted 2 days ago
Closing in 6 days
Age UK East London, London (Hybrid)
£30,074 - £33,241 per year
Responsible for responding to referrals received over the weekend from Royal London Hospital & Homerton Healthcare NHS Foundation Trust.
Posted 1 week ago
Closing today at 15:58
Third Solutions, London (Hybrid)
Up to £38164 per annum
Posted 4 weeks ago Apply Now
THINK Recruitment, Remote
£58,000 per year
Posted 1 week ago Apply Now
Closing in 6 days
Age UK East London, Remote
£25,977 - £29,159 per year
The hospital to home service works collaboratively with hospitals to support people when they are discharged from hospital to return home.
Posted 1 week ago
Guy's and St Thomas' Foundation, London (Hybrid)
£33,000 - £36,000 per year
Posted 1 week ago
River Action UK, Remote
£60,000 per year
We're looking for an exceptional campaigner to lead an ambitious environmental campaigning programme for just over a year as maternity cover
Posted 3 days ago
Closing today at 09:00
Rainforest Foundation UK, London (Hybrid)
£65,817 per year
Lead fundraising and communications for our growing global team, protecting rainforests and Indigenous rights.
Posted 1 week ago
Page 24 of 33
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.