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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 2 days ago Apply Now
Top job
Muscular Dystrophy UK, London (Hybrid)
£28,000 - £30,000 per year
Join an amazing charity that makes a difference for the 110,000 adults and children in the UK with a muscle wasting condition
Posted 1 day ago
Closing in 5 days
Think Active, Multiple Locations (Hybrid)
£29,094 per year
Lead and manage relationships with partners, promoting collaboration across sectors. Raise awareness of funding opportunities.
Posted 1 week ago

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Brent Mencap, Willesden (Hybrid)
£38,625 (FTE) during probation, then £43,260
Posted 1 day ago Apply Now
Closing today at 23:00
Malaria No More UK, London (Hybrid)
£30,000 - £33,000 per year
Join Malaria No More UK as our Senior Advocacy Officer and help end one of the world’s deadliest diseases.
Posted 1 week ago
1001 Critical Days Foundation, London (Hybrid)
£60,000 - £70,000 per year
We are looking for a highly motivated proven team player to join our ambitious and fast-growing international charity.
Posted today
Every Casualty Counts, Remote
£48,710 per year subject to experience, FTE. A London weighting may be applied if applicable.
Posted 4 days ago Apply Now
Birmingham Women's and Children's Hospital Charity, Birmingham (Hybrid)
£39,689 - £41,886 per year
Posted 1 week ago Apply Now
The National Lottery Community Fund, Multiple Locations (Hybrid)
National: £36,000-£43,000, London: £39,301-£46,943
Posted 6 days ago
Closing in 4 days
Depaul UK, London (On-site)
£40,000 per annum
Posted 1 day ago
Closing in 7 days
Prospectus, London (Hybrid)
£21.43 per hour (+ holiday)
Posted today
Closing in 4 days
Alzheimer's Research UK, CB21, Cambridge (Hybrid)
Circa £44,000 per year
Posted 4 days ago
Page 6 of 20
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

Edzard session.jpggroup photo.jpgENU2022.jpgBES 2022 Jo Talking.jpg
Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.