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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We’re looking for a hands-on and adaptable IT professional who combines strong technical expertise with a commitment to social impact. This role blends operational IT leadership with vocational training support.
You will take ownership of technical quality across our charitable refurbishment programme while working alongside teaching staff to support vulnerable adults in developing practical industry standard IT skills. Your contribution will directly support our mission to reduce the digital divide and create pathways into employment through technology.
Key Responsibilities
1. Refurbishment, Training & Technical Quality
2. eCommerce & Sales Support
· Work closely with the Multi-Channel Sales Executive to support online sales activity
3. Systems, Data & Infrastructure
What We’re Looking For
Technical Skills & Experience
Soft Skills
Personal Attributes
CV and covering letter
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Title: Community Fundraising Manager
Location: Hybrid, minimum 1 day per week in London Bridge office
Contract: Fixed Term for 6 Months - Full-time
Working Pattern: Four–day working week (32hours)
Reporting to: Head of Fundraising (Community & Events)
Salary: £34,000 – £37,000 per annum
About Spinal Research
Every two hours, someone in the UK becomes paralysed. Globally, more than 15 million people live with paralysis. At Spinal Research, our vision is a world where paralysis can be cured. We fund groundbreaking research to deliver life-changing treatments for people with spinal cord injuries. By backing the brightest minds and fostering innovation, we are driving progress towards what could be the medical breakthrough of the 21st century: curing paralysis. We will not stop until that future is achieved.
The Role
This is an exciting opportunity to step into a newly shaped role following a restructure that has created space to further strengthen and grow our community fundraising programme. You will be working closely with the Head of Fundraising (C&E) to create and deliver a new community fundraising strategy, and will agree the key priorities for the role to ensure a clear and realistic focus for the contract period.
This is a 6-month contract role, created to provide immediate expertise and momentum during a period of change. There is scope to make the role permanent, subject to success and organisational needs.
As Community Fundraising Manager, you will play a central role in shaping a fundraising programme with lasting impact. You will take ownership of growing income, expanding supporter engagement, and building long-term relationships across the community.
We are looking for an engaging, proactive and enthusiastic individual who can bring structure, creativity and energy to help shape the future of community fundraising and inspire supporters and volunteers to get involved and maximise their impact.
Key Responsibilities
Strategy & Growth:
Supporter Engagement & Stewardship:
Fundraising Delivery:
Recruitment & Communications:
Systems, Insights & Reporting:
Collaboration:
About you
Experience:
Skills & Attributes:
Why Join us?
Working Arrangements
Ready to help us deliver life-changing impact?
Apply now to join Spinal Research and play a key role in our mission to cure paralysis.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About Working Well Trust
Working Well Trust is a mental health and employment charity in London. All of our projects share the aim of improving the lives of people with mental health support needs, learning disabilities and/or complex issues through training and employment.
We are recruiting IPS Employment Advisors to join our IPS service in the London Borough of Barking and Dagenham. You will be based in NHS mental health treatment teams in Barking, Dagenham and Rainham areas, working 35 hours per week. IPS services at Working Well Trust have been awarded the IPS Grow quality mark and adhere closely to the principles of the IPS model in supporting people in to employment. This role will be working with clients who have mental health support needs, wanting to gain paid employment.
Experience of employment support is not essential, it is more important that you share our passion and commitment to employment as an integral aspect of wellbeing and supporting people to find the right job for them. You will receive training on the IPS model and in supporting people with mental health issues. We welcome applications from people with lived experience of mental health, either personally or through a close contact.
You need to have a desire to support people to achieve their employment goals, and the ability to multitask and manage your workload effectively. Good organisation skills are essential for this role, in addition to an interest in mental health, and the role it plays in the workplace. The successful candidate will need to become comfortable in approaching employers, and showcase the advantages of our service in order to work with them to recruit our clients to fill vacancies and sustain employment.
What you’ll be doing
You will work with clients (managing a caseload) who have mental health support needs, to assist them in securing sustainable paid employment in line with their preferences. You will deliver the IPS approach (for which training will be given); providing person centred support and guidance to clients, whilst building positive relationships with local employers to enable clients to move into suitable employment.
You will work as part of a mental health team (NHS Trust) maintaining positive and integrated relationships, fostering a holistic approach to recovery through employment. You will work closely with clinical teams, providing a coordinated approach that always remains client led.
You will spend up to 65% of your week working in the community of Barking and Dagenham to provide localised support to residents of the Borough.
You will also be working to contract targets whilst maintaining a high-quality service.
What you’ll need
Experience in employment support is not essential. We are looking for someone who brings:
What we offer
What’s next
Before you apply, please note the following:
We actively recruit and carefully review all applications. Due to rapid service expansion, we have onboarded 20 external hires in the last six months.
To ensure we can best support the people and communities we serve, we progress applications only where candidates provide meaningful answers to the screening questions.
Career development is real here: in the past year, 10 colleagues have progressed internally into Senior roles, Project Lead, Team Lead, and Operations Manager positions. We value ambition and celebrate progression.
If you require any reasonable adjustments at the interview stage, for example due to a disability, learning difficulty or health condition, please let us know in advance so that we can make appropriate arrangements.
Working Well Trust is an equal opportunities employer and Confident about Disabilities.
If you are ready to help us build a service that supports people into meaningful work, click Apply to submit your CV and answer the screening questions.
Start your application today and take the next step in a rewarding career.
Closing date: Friday 29th May 2026 (09:00). Please note, we may be actively interviewing during this time and may close the vacancy early.
Telephone interview stage: 4th - 10th June 2026
Final Stage interviews: 15th- 16th June in person at Barking Hospital
Application Instructions
To apply, please upload your CV and answer our screening questions outlining how you meet the person specification.
Please note that any incorrect information provided at application stage may result in a retraction of job offer during pre-employment checks.
At Working Well Trust, our mission is to support people experiencing mental health challenges and/or are neurodiverse on their employment journey.
The client requests no contact from agencies or media sales.
Join an amazing charity that makes a difference for more than 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.
We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.
As part of our safer recruitment and safeguarding responsibilities, this role requires a DBS check and professional/character references. We are committed to inclusion and will consider each application fairly.
About you:
The Information Manager is an exciting role at MDUK, that will sit within the Services and Support team.
You'll:
About us:
Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.
This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.
Values and behaviours:
Benefits:
We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We believe in supporting our people both professionally and personally.
Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offer range of benefits includes great pension contributions, life insurance, cycle scheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more...
Location: We operate a hybrid model (home and office, London SE1).
Closing date: Sunday, 24th May 2026
NB Interviews likely to be held on the W/C 10th June 2026
Please download the job description to see full role responsibilities
We connect a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions and people around them.



The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The Marketing Officer/Senior Marketing Officer (Retention) at CBM UK is an important role in making our life-changing work possible. Advertised at Officer or Senior Officer level (subject to experience), the role delivers direct and digital fundraising appeals to existing individual supporters, high value donors, and churches to drive donations and grow awareness, through creative and impactful fundraising communications.
Key responsibilities:
The position holder is responsible for developing fundraising campaigns for individual supporter audiences; supporting the development of the annual public fundraising plan; building supporter journeys and testing new channels and messages.
Working closely with the Head of Marketing and across the Fundraising & Communications team, the Marketing Officer/Senior Marketing Officer (Retention) is responsible for planning and delivering a significant marketing programme, carrying out fundraising campaigns to existing supporters across multiple channels, including direct mail, email, and telephone.
Cultivation appeals (60%)
a. Deliver regular and inspiring off-line direct marketing campaigns to existing supporters on time and within budget. The role holder will plan, co-ordinate and prepare fundraising appeals. This involves creating briefs, working alongside freelance copywriters and designers, and managing print and fulfilment suppliers.
High donor fundraising (20%)
New product testing (10%)
Planning and reporting (10%)
Other
Please download the recruitment pack for full details.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The Marketing Officer/Senior Marketing Officer (Acquisition) at CBM UK is an important role in making our life-changing work possible. Advertised at Officer or Senior Officer level (subject to experience), the role delivers direct and digital marketing communications to grow awareness, and recruit and engage with new long-term CBM supporters, through creative and impactful fundraising communications.
Key responsibilities:
The position holder is responsible for developing and delivering fundraising campaigns that will engage with CBM target individual audiences; supporting the development of the annual public fundraising plan; building supporter journeys and testing new channels and messages.
Working closely with the Head of Marketing and across the Fundraising & Communications team to plan, coordinate and deliver donor acquisition appeals to recruit new individual supporters, using a variety of direct and digital marketing channels.
Regular giving (mostly monthly Direct Debits) are a large part of CBMs donor acquisition activity, and as such, part of this acquisition role is the planning and co-ordination of regular giving conversion, recruitment, retention, and upgrade campaigns.
Donor Acquisition (30%)
Regular Giving (20%)
Legacy and In-Memoriam Giving (20%)
New product testing (20%)
a. Test and develop new fundraising ideas, channels and messages to engage with and raise funds from new and existing audiences.
b. Maintain an awareness and anticipation of charity sector trends relating to direct marketing and keep abreast of competitor activities to enable CBM to respond and adapt quickly where appropriate.
Planning and reporting (10%)
Other
For full details, please download the recruitment pack.
The client requests no contact from agencies or media sales.
Who we are, what we do
Father Hudson’s Caritas (FHC) is a social and community care charity working across the Catholic Archdiocese of Birmingham. For over 124 years we have responded to need, helping people to lead fulfilled lives through our range of services and partnerships. Our work is rooted in a Catholic ethos and we welcome and support people of all faiths and none. As an organisation we have continued to adapt our services to the changing needs of those who are most vulnerable; it is an exciting time to join our organisation as we deliver our new 3-year strategy.
The Role
As our Head of Finance, you will be a key member of FHC’s Senior Management Team, providing strategic and operational leadership across finance and the wider resources portfolio (Finance, IT, Estates and Facilities). Working closely with the CEO and Trustees, you will ensure strong financial planning, robust controls, clear reporting and regulatory compliance.
As part of this senior role you will line manage the Finance, IT and Facilities Manager. We’re looking for a values-led leader who will model FHC’s organisational values, including compassion, respect, collaboration and excellence.
What we are looking for
You will be CCAB qualified and bring senior-level financial leadership experience with the ability to operate confidently in a complex, mission-driven social care environment. We’re particularly keen to hear from candidates who can combine strong technical skills, a thirst for digital transformation and effective use of resources, alongside collaborative, person-centred leadership.
Location
The role is based at our modern, purpose-built Head Office in Coleshill – St George’s House, Gerards Way, Coleshill, B46 3FG.
Closing Date: Monday 1st June 2026
Interview Date: Thursday 11th June 2026
Our Mission is to respond to need, helping all people to lead fulfilled lives through our range of services and partnershi



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
JOB TITLE: Outreach Coordinator (Families and Patients, all ages 0-25)
HOURS OF WORK: 24 or 32 hours per week £27,500 FTE – Actual Salary = 24h £16,500 PA / 32h £22,000
PLACE OF WORK: ECHO charity Office, 1 Royal Street, London SE1 7LL, Office & hospital-based Evelina London Children’s Hospital, with some community
Days of Work: Mandatory Monday team day & Thursday will be an 8 pm finish. Actual days/hours to be agreed.
RESPONSIBLE TO: People and Impact Lead
TYPE OF CONTRACT: 2 years
BENEFITS INCLUDE 25 days annual leave (pro rata) increasing to 28 in service, winter shopping day off, workplace pension & flexible working
ECHO’s Outreach Coordinator will provide support to families of children and young people aged 0-25 affected by CHD (Congenital Heart Disease) and patients.
This role will have around 20% of time to focus on finding out the needs of 18-25 patients, parents, and siblings, and developing support and information for them.
We are an independent charity who support families treated by the Evelina, London & Royal Brompton, and Harefield hospital networks, and the CHD network of 47 local hospitals, and are based close to the Evelina London Children’s Hosptial.
Can you… work in a hospital environment, on the phone, and online; plan visits or events such as a zoo trip or a party; support children, young people, and families through diagnosis, treatment, care, and, at times, the loss of a child; and provide needs-led emotional, social, and practical support to children with heart conditions, their siblings, parents, and carers?
Can you also research the needs of 18–25-year-olds, develop peer support and programmes for them, and deliver this on a small budget with patient and carer input throughout?
This role provides high-quality emotional, social, and practical support to children with heart conditions, their siblings, parents, and carers, from birth to 25 years. You will deliver 1-to-1 outreach in the hospital and the community, lead play and wellbeing activities, and maintain a visiting programme across children’s departments, including PICU, Cardiac, and NICU. 20% of your focus is supporting young people aged 18–25, identifying their needs, assessing numbers, and developing peer support programmes. The role also involves creating resources and accurate information for families, offering guidance for those facing bereavement or loss, promoting wellbeing across hospitals and networks, planning events, contributing to closed social media groups, maintaining records, and capturing impact through case studies and testimonials.
You will embrace our database, AI, and tools that can support families and our small charity to make a bigger impact.
You will have experience of working in emotionally demanding situations, be dedicated to supporting people, and be able to guide families through the impact of medical diagnosis, treatment, and bereavement with compassion and understanding.
Support
Please use the link above to send us your CV and a Cover letter that demonstrates you meet the above criteria.
Closing date: 3rd June midnight
The first interview will be held online the week beginning: 8th June
With an in-person interview for shortlisted candidates at the ECHO office on 15th June.
This role will need DBS, two references, and an honorary contract with the NHS
ECHO is an equal opportunities employer and welcomes applications from everyone
The client requests no contact from agencies or media sales.
Fundraising Manager — Thrive (Community Council for Somerset) £35,000–£40,000 | Hybrid / Somerset | Permanent | 35 hrs (flexible)
Thrive has been at the heart of Somerset's communities for 100 years. Village agents supporting isolated older people. Diverse communities programmes. Fuel poverty campaigns. Real, local, human work — delivered across every corner of the county.
This centenary year, Thrive is building its next chapter. A new chief executive has reset the strategic direction. Community energy is building. And the organisation has made a clear decision: it wants a sustainable fundraising base that isn't dependent on statutory contracts alone.
This role is the cornerstone of that ambition.
This isn't a maintenance hire. It's a builder's role.
The Fundraising Manager will lead across community fundraising, individual giving and trusts and foundations — with community and individual giving as the primary focus. The tools are in place. The mission is compelling. The stories are extraordinary. Thrive already has the reach, the relationships and the centenary momentum. What's missing is the right person to build the pipeline and turn that momentum into lasting income.
The target: 2,000 active supporters by year end, with a clear pathway to converting them into regular givers over time.
What you'll be doing:
What we're looking for:
What Thrive offers:
This role will suit you if:
You want to be a Head of Fundraising one day. You're frustrated by being siloed. You want breadth, autonomy and the chance to build something that matters — in a place where the mission is real and the communities are real.
This role is being recruited exclusively through Raise + Recruit, an independent not-for-profit executive search adviser. All enquiries are handled in complete confidence.
For a confidential conversation, contact John Austin — no obligation, no lengthy application process at this stage.
Review the full pack here https://thrive-candidate-brief.vercel.app/
The client requests no contact from agencies or media sales.
Hours: 37.5 per week
Salary: £57,000 per annum
Contract: Permanent
Location: Our office, Unity Business Centre, 26 Roundhay Road, Leeds LS7 1AB
Deadline for applications: Monday 15th June, 12 Noon
Job Interview Date: Monday 29th June
The Director of Finance, Corporate Services & Income is a senior leadership role responsible for ensuring Advonet is financially sustainable, well-run and resilient. The role provides strategic financial leadership, oversight of corporate services, and a significant focus on income generation and diversification.
This role plays a critical part in strengthening Advonet’s long-term viability by improving financial decision‑making, embedding a culture of income awareness and diversification, and enabling managers and teams to contribute confidently to business development activity.
The client requests no contact from agencies or media sales.
Join an amazing charity that makes a difference for more than 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.
We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.
As part of our safer recruitment and safeguarding responsibilities, this role requires a DBS check and professional/character references. We are committed to inclusion and will consider each application fairly.
About you:
The Special Events Officer is an exciting role at MDUK, that will sit within the High Value Engagement, Fundraising team.
You'll:
About us:
Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.
This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.
Values and behaviours:
Benefits:
We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We believe in supporting our people both professionally and personally.
Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offer range of benefits includes great pension contributions, life insurance, cycle scheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more...
Location: We operate a hybrid model (home and office, London SE1).
Closing date: Friday 22nd May 2026
NB Interviews likely to be held on the following dates:
Please download the job description to see full role responsibilities
We connect a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions and people around them.



The client requests no contact from agencies or media sales.
You'll support design and delivery of multi-channel creative, tell our incredible research stories, and work with storytellers to put their lived experience at the heart of everything we do. This is a varied and creative role, producing new social media and website content that resonates with our communities, works to optimise our digital channels to maximise engagement, and helps to deliver our new content strategy.
About you
If your knowledge, skills and experience include the following then we'd love to hear from you:
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Ability Housing is a not-for-profit organisation dedicated to providing high-quality, accessible, and sustainable homes for people who need them. We focus on enabling independence and improving quality of life, and we are proud of the positive impact our properties have in communities across the South of England.
As we continue to invest in and maintain safe, modern, and energy-efficient homes, we are looking for a skilled Building Surveyor to join our friendly and purpose-driven team.
The Role
As a Building Surveyor at Ability Housing, you’ll play a key part in managing the condition, safety, and ongoing improvement of our property portfolio.
You will:
This is a fantastic opportunity for someone who enjoys a mix of technical work, problem-solving, and making a genuine difference to residents’ lives.
About You
What We Offer
The client requests no contact from agencies or media sales.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



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